20150412_144316

Flipping the Light Switch

Since there isn’t much to report I’ll be quick with the medical update. What looked promising on Thursday just didn’t happen. Her counts have not improved her hemoglobin has actually dropped below her typical transfusion level and she is just hanging out in limbo on blood production. We are still waiting for those baby blood cells to produce healthy blood cells. Her pain has
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Time to Pause

A typical week in the Cancer world. Savannah started out strong with an improvement in counts and then her bone marrow decided to take a break. The last 24 hours has brought good news and bad news, buckle up, the roller coaster is rough. Good news: she has been flourishing at home, weaning (now completely off) the steroid has helped her mood 100%. She
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Beautiful Surprises

Today began with a surprise increase in Savannahs neutrophil counts. Her ANC has passed the 200 Mark! This simply means that she is beginning to produce bone marrow once again is on the mend from her last Chemotherapy. This is not exactly a sign of health by any means but if everything continues to double for the next few days she should be sitting
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Bacteria and Stages of Grief

Update: Savannah was admitted to Childrens yesterday because of a full blown fever she developed while we were in Radiation (103.9) Her heart rate was elevated as we began and Justin and I immediately felt the doom of what that meant. After blood cultures she has tested positive for Bacteria group B – that could be totally wrong but it’s simpler than explaining the
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Packing those ‘Real’ Bags

The past few days have been a disappointment count-wise. Those of you not on Facebook might not be aware that her blood counts are just lingering at the bottom. We got the decision from her doctors on Tuesday that they are upping the parameters of her platelet infusion from 10-20 (normal range is between 150-500). This should have us in the clinic about three
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Broken Pieces

I write a lot about rainbows and roller coasters. Sometimes, like today, there are no ups and downs there are only shattered pieces. Today I was broken, and that’s okay. After waking with Savannah crying once again to eat and knowing that she couldn’t I was already broken. I gave her the meds and made her shower and carry on with the day. Each
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