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Enjoy the Journey

I’ll be quick with the medical as they are somewhat boring and somewhat painful. Savannah checked in for her MIBG treatment last Monday and handled the treatment like a champ. She began the day by having a Foley catheter placed as well as a NG tube and IV. Due to her increasing drop in blood counts she received a hefty blood transfusion as well.
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Haha, Just Kidding

As I explained in my last post our plan was to move forward with a Phase 1 clinical trial that Savannah was supposed to start this Monday. Unfortunately due to the lingering disease in her bone marrow her blood production is still wavering and she did not qualify to begin. We had the option to re-scan and check for progressive cancer and try to
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Feeling Good

Operation Cactus or bust was a success! As you can see from the picture even though that is not a Saguaro cactus she was thrilled with every one that she found. Which, being in the desert there were cactus everywhere! (If you have not checked the Myrickstrong Facebook page yet, I suggest you do, the pictures are awesome!) The car ride into Tucson was
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Cactus or Bust!

Scan results were given Tuesday and I have just needed a few days to wrap my head around the whole thing. Like a band aid: top to bottom? Here goes: The tumor in her head is significantly smaller. No surprise the radiation did it’s thing, The chemo that was meant to kill the tumor did not work and the tumor in her head is still
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Celebrate What You Can

I apologize for the lack of details this past week. It has been-quite a week. Monday we went in, Savannah tired, me just looking for answers requesting an exam before they even drew labs. I was done questioning myself and her state of health. She was feverish upon lab draw so we were admitted right away but not before I was able to sit
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A Mother Knows

Thursday did not bring the hopeful counts we were looking for. Savannahs blood counts actually dropped the lowest they have ever been. The bottom half of her CBC was all 0s still and her hemoglobin was only 4 (low level of healthy is 11). This was so low that for the first time ever Savannah got 2 units of blood that day. Not one
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