Broken Pieces

I write a lot about rainbows and roller coasters. Sometimes, like today, there are no ups and downs there are only shattered pieces. Today I was broken, and that’s okay. After waking with Savannah crying once again to eat and knowing that she couldn’t I was already broken. I gave her the meds and made her shower and carry on with the day. Each
Read more »


Dusting Off the Cobwebs

Meds are due at 1, in an effort to not fall asleep before then, I choose to blog. Please be forgiving of my scatter brain. I’ll start with the scan results. To be honest I don’t know what they mean, they mean more tests to come. MIBG is a nuclear contrast that is specifically picked up by Neuroblastoma. The results showed active cancer in
Read more »


Life

Not much to update medically wise. Savannah started radiation yesterday and is being awesome. They created a mask for her to wear that will stabilize her head and make the process accurate. Because of the need for radiation being so time sensitive it was decided that she be sedated for the procedure. The procedure itself takes five minutes but the sedation process and everything take
Read more »


Just Keep Swimming

Not much to update other than that we are done with the first round! Whoop! We had a quiet Sunday just preparing for the week ahead. Savannah handled the chemo well and it should be all out of her system by now. This is when the fun begins. She is not really struggling with nausea as we have been staying on top of her
Read more »


Hold onto your pants folks!

I apologize for the delay in real updates. Somehow I have misplaced my laptop so hospital days leave me a little disconnected. Not only that but these past three days have been a bit trying. I’ll start with the medical then finish with a bunch of jabber. But, let me begin by saying that we are happy to report that she is home and
Read more »


Relapse

It’s been a long time and I am not thrilled to be posting this news. As many know Last week we learned that Savannah has relapsed. I have not provided many details (if any) one, because I don’t have much and two because for some crazy reason I was hoping that the hospital would call and say there had been a mistake. No luck
Read more »